L’Shana Tova

L’Shana Tova!!! Wishing all a great and HEALTHY year.

Remember my fellow lupus patients:

“If you don’t like something change it. If you can’t change it, change your attitude. Don’t complain”  – Maya Angelou

It is that time of year again, Rosh Hashanah, the Jewish New Year. I am out celebrating- but will be back very soon to continue my story (yes, it is the real truth 🙂). As my dear friend reminds me: “So, you know you have to be extra good for the next 10 days…” Yikes! Looks like I need to review what being good is… 

Want to learn more? Click here: http://www.washingtonpost.com/blogs/guest-voices/post/rosh-hashanah-ettiquite-guide/2011/09/27/gIQA8JrM4K_blog.html

In the meanwhile, please enjoy:

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Stories of a pimp cane

More than 90% of SLE patients will experience joint and/or muscle pain at some time during their illness. 

“It is not uncommon for people with lupus to experience muscle aches and pain (myalgias) or have inflammation of certain muscle groups (myositis), which causes weakness and loss of strength. More than 90 percent of people with SLE will experience joint and/or muscle pain at some time during the course of their illness. Muscle aches and pain may be from symptoms that happen when your body is responding to some type of inflammation, from muscle atrophy (weakness), or from a true myositis. Some people with lupus develop myositis, an inflammation of the skeletal muscles that causes weakness and loss of strength. Lupus myositis often affects the muscles of your neck, pelvis, thighs, shoulders, and upper arms; difficulty in climbing stairs and getting up from a chair are early symptoms. Later symptoms may include difficulty lifting objects onto a shelf, lifting your arm to comb or brush your hair, getting out of the bath, and even raising your head or turning over in bed.”

I have a pimp cane. I am 30 and I have a pimp cane- a leopard-print cane that helps me get around and with STYLE. I know there are many in my position…. too young to be using a mobility aid. I tried to research stats regarding how many of us are out there but could not find anything, but that does not mean it is of insignificance prevalence. In addition to my muscle and joint pains, Dr. Lupus has the pleasure of treating my muscle weakness (the fancy term- myositis). Somedays, my legs will pass a  message to me that they are on break (or on occassions go on strike), giving me the impression that I am too heavy for them (On the real: I am not going to deny that I have put on a couple of pounds since the initiaion of my steroid therapy and the lack of movement caused by pain and weakness does not make me any skinnier… as I eat a full plate of tex-mex in my bed). BUT how dare my legs suggest that I am toooooo overweight! It is on these days that I pop in a Mintos (I substitute Mintos with Vicodin) and look to my trusty cane. As soon as I grip onto that handle, something comes over me. It is like I gain super powers and a new attitude- an attitude beyond my typical diva-ish ways-one that is similar to the famous character Dr. House. For those who have never heard of this fictional character- shame on you! This character paralells the greatness of Sherlock Holmes. I’m not going to rant about House, as I am pretty sure there is a blog dedicated to the show and the character (now I am curious to know… let me know if you find one). Here is the point of this blog, I turn into a Vicodin-, steroid-, meloxicam-popping, bitter, moody curmudgeon with a triple dose of wittiness when holding my walking cane (aka pimp stick). But, honey, why are you so bitter when using the cane (you may ask)? Here’s my answer: Because I am in pain and I can 🙂 .

Are you using a pimp stick? Here are the top 5 pimp stick activities that will make all non-users jealous:
5. Poking people to get their attention instead of using your voice.

4. Sitting on a park bench and enjoying the day while tripping joggers.

3. Shaking cane angrily and possibly yelling “You wipper-snapper!”- this is an ultimate form of expression.

2. Cane-wars: an old-fashion artform among two sophisticated opponents who have an argument to settle. (Sophicated is defined by one who uses cane). cane wars pics on Sodahead

1.  Causing pure disruption. This video explains it all: 

The Ideal Medicine Cabinet

Yes… I know… I have been M.I.A. for a couple of weeks. Do not worry my dear fans, I am back with many stories to tell. So much has happened in September, including a lumbar puncture, feeling like crap after the procedure, labor day weekend, my 30th birthday week-long celebration. The most important task that I have done is complete my ideal medicine cabinet.

Lupus encompasses many symptoms and often associated with other diseases (how many of us also have osteoporosis, depression, arthritis, etc??!?). As an Argentine and professional wine-o (still arguing that topic with Dr. Lupus), I have developed nice prescription regimens to alleviate my symptoms:

Disease

Wine

Daily dose

Allergies Neuf- du-Pape Burgandy 1 glass
Anemia Pinot Noire 4 glass
Arthritis Hennessy Cognac, VSOP 1 bottle / week
Bronchitis Bourgogne or Bordeaux
(+ sugar and cinnamon)
3 cups
Constipation (because of all those damn pain meds) Anjou blanc electricity .. Vouvray 4 glass
Coronary arteries Dry Champagne, Cognac 4 glass wine, 2 shots cognac
Diarrhea Beaujolais Nouveau 4 glass
Fever Champagne sec 1 bottle
Heart Burgundy , Santenay Rouge, Cognac 2 glass wine, 4 shots cognac
Uric acid gout Sancerre , Pouilly Fume 4 glass
Hypertension Alsace , Sancerre 4 glass
Depression Rhine, Cognac 4 glass wine, 1 bottle cognac
Rheumatism Champagne 4 glass

Who says we have to live in agony? 😉 Salud to all of you!!

(I can’t take credit for this fabulous idea/invention. I want to thank my favorite uncle who sent me this information in an email)