Hair loss and cover-ups

Experiencing hair-loss because of xx medicine or xx disease? I have touched on this topic several times (check out: this, this and this). It has been two years since I shaved my head, and to be honest, I would do it again! Being bald was an eye-opening experience and a life-changing event for me (the diva pre-lupus was lame!). But I do looove my hair. Although I have come a looong way and have enough hair to style (I use a hair dryer!), I still tackle bald spots on a daily basis. If you are in the same boat as me (i.e., have enough hair to go without a wig or scarf), let me elaborate on some options you can use as a cover-up:

1. Make friends with your hairdresser. Explain your situation and have him/her give you a cut/style that helps with your cover-up. It is amazing what a good style can do for you. My hair is styled with longer layers around the bald spot– so that I can use the Donald Trump move of swooping hair over the spot, without looking cheesy.

joan2. Joan Rivers Great Hair Day: My auntie, Joan Rivers ;), came up with a great product to give the illusion of thick full hair, hide hair loss, thinning hair, bald spots & root growth. This product comes in three shades: blonde, brunette, and salt and pepper (although I have seen shades for red-heads). This is a powder that dulls your shin y bald spots, therefore, giving the illusion of thicker hair. The powder comes in a compact, which includes a mirror and brush applicator for easy application. You can use the non-brush end of the applicator to separate your hair strands to expose the bald-spot, then you simply brush on the powder to the spot. It is very easy to use and is great for an easy cover-up. FYI: Running behind on your hair color maintenance? This product works for root-touch-ups. Diva tip: Although this product will not smear, I recommend hair-spraying the blotted areas for extra staying power.

Pros: Easy to use and on the cheap (no more than $19.99). Works great for smaller cover-ups. Can order from online retailers (QVC, etc) or from retail stores, such as Bed, Bath & Beyond.

Cons:  If you are trying to hide a larger-than-dime-size bald spot, consider using the options below. When I used this powder for larger areas, it looked like I painted on my scalp.

2. Hair fibers (Products: Kamo and XFUSION)

xfusionThe new wave of cover-ups has arrived. Hair fibers are one-step ahead of the powders and spray-on bottles, by giving the illusion of hair strands on your bald spot. The problem with powders and sprays is that, when applied to larger areas, it looks like you colored your scalp. These hair fibers give dimension– you are literally applying hair to your bald spot. Hair fibers cling to your existing hair strands for a great blend. These fibers hold on for dear life and stay on until you shampoo your hair. These products are sold in salons and come in a variety of colors to match you. I have used both the Kamo and XFusion fibers, and they both do the job. No more worrying about exposing your bald spot– you have more important things to think about!

How to apply: USE ON DRY HAIR ONLY! You do not want a wet clumpy hairy mess on your hands. Style your hair as usual (i.e., apply all products needed). Find your spot, and shake on the fibers. Gently pat to disperse the fibers. Again, I recommend, hair spraying the area for extra staying power.

Pros: Easy to use and quicker than brushing on powder. Your cover-up will not look like a cover-up.

Cons: Cost is higher but you are paying for what you get. Kamo fibers are exclusively sold at Visible Changes in Texas only. 😦 XFusion fibers seem to more widely available, and you may order online.

It is unfortunate that we are young and have to experience with issues, such as hair loss, however, it does not have to beat us down. Luckily, there are options and products we can use to make the issue disappear for a moment. Jiggly women (i.e., ME) use SPANX all the time… why not use these cover-ups to give another illusion? The great thing is that you are still able to rock your hair and show-off your great personality. If you have any more cover-up suggestions, please feel free to add to the list!

Stay Fabulous!

Lupus E-Cards

Not a day goes by without seeing an E-card created by Someecards.  Out of pure curiosity (and for a need for some funny), I searched for “lupus” e-cards and this is what I found:

lupusecard_8lupusecard_6lupusecard_7lupusecard_4lupusecard_2lupusecard_3lupusecard_1lupusecard_5

Giggling, yet? Spread the joy.

STAY FABULOUS!

This post gives a great (and witty) perspective on lupus fog and how to cope with it. I, too, use Evernote (www.evernote.com) to help with my memory deficits. It is a free application that can be applied to your PC, mobile or tablet.
STAY FABULOUS!

Wisdom City

I love this quote so very much!

I’m not writing it down to remember it later, I’m writing it down to remember it now.

I lifted it from the front page of the Field Notes website, and if I ever get a tattoo of a phrase on my inside wrist, it will be these words.

As a result of experiencing lupus fog, information often feels like it simply drains out of my brain regardless of how hard I try to retain it, and to compensate I semi-obsessively write things down, and record voice notes, and use tools such as Evernote to capture and store longterm memories. For that reason, the idea of writing something down to remember it now makes perfect sense to me.

To anyone else with a fog-like condition (for example, people with fibromyalgia often talk about ‘fibro fog’) who stumbles on this post, how do…

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Frustration with wrappers

prednisone

Steroid-driven hunger drives me to eat anything in my path. After 3 years of taking daily prednisone (doses ranging up to 80 mg a day), I have the body to show for it. I am a jiggggly woman with a moon-faced shape. Maybe when I go on a hunger-rampage I should consider chomping on a piece of lettuce instead of the fried turkey leg… but I digress…
kitkat
Today, I could not resist the Kit Kat staring at me. I immediately tackled the candy bar and started to unwrap it, but then I came across a dilemma. I COULD NOT UNWRAP IT! I tried every technique known to man, including the one where you tear along the printed dashed line and the one where you split the wrapper by using both your hands (similar to opening that stubborn bag of chips), AND NOTHING! I could not get into the blasted Kit Kat. I looked at my hands with such disappointment. My poor hands are no longer dependable tools. They ached and were a bit swollen. This wasn’t the first time that joint pain and inflammation has kept me from getting things done. It gets frustrating but we must learn to cope, especially when we are too young to be complaining about “achy” hands. Luckily, I was able to bug a co-worker to open my candy bar to feed my steroid-driven hunger. However, someone is not always around. If I can’t find someone to help me out, I just put whatever I am doing down and walk away. There is no need to get frustrated. I usually make another attempt once my hands feel better. But most of the time, I usually throw the item against the wall. Problem solved.

STAY FABULOUS!

Pssst…Words with friends is Scrabble

If you are a lupus-fighter, like me, then you probably spend a good chunk of time in bed watching whatever is on TV.

Diva’s note: It is OK to spend some good restful time in bed. You and I need our rest. Now [shaking finger at you], don’t be spending every waking minute in bed– time is precious.

Interrupting my precious TV are the holiday-gift-giving-ideas of commercials that keep displaying on the screen. One in particular that catches my attention is the Words with Friends board game. How many of you have thought the following: “Why don’t they just call it what it really is…. SCRABBLE.”

scrabble_wordswithfriends

If you don’t realize that this board game is just Scrabble with a niftier title than you are just too young…

My plan this holiday season will be to re-gift my scrabble board game to someone of the younger generation.

STAY FABULOUS!