Raw Awareness

Hola my dear fans. I came across this tweet (follow me @divawithlupus) from Lupus Today.

@LupusToday: Please retweet our new #lupus awareness poster and help improve understanding for this often invisible condition. http://p.twimg.com/AyEnO9gCAAAs7h9.jpg

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What are your thoughts about the poster? Personally, I applaud any efforts of spreading lupus awareness! Do your part! Let’s increase awareness and improve the knowledge of a chronic disease that physically and emotionally affects millions.

Stay fabulous!

Posted from the Diva on the road

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Happy World Lupus Day

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World Lupus Day, May 10, focuses on the need for improved patient healthcare service, increased research into the causes of and a cure for lupus, enhanced physician diagnosis and treatment of lupus, and better epidemiological data on lupus globally.

This is the day that all lupus warriors across the globe stand-up, band together and show our strength. YES… it is more difficult to do XY and Z, and YES… we miss the days of when doing our own nails in that fabulous shade of purple seemed an easy task. REALLY- IT TOOK ME 2 HOURS TO DO MY OWN F-ING NAILS. MY HAND COULD NOT STOP SHAKING AND THAT STUPID WAND APPLICATOR KEPT SLIPPLING FROM MY FINGERS. There is purple nail polish EVERYWHERE!

I am going to take this fabulous moment to spread some awareness and give you the lighter side lupus (does that even exist?).  Remember that list I made about what lupus took away? Well, here is the other side of the coin:

1. Lupus gave me the strength take on anything and everything. You got something for me? BRING IT! I have no doubts that I will still be able to rock it out and survive through anything.
2. Lupus made me realize what’s important to life.  It is so easy to make a decision now, because that decision has to be made with ME and my health in mind. Yes, my Friday & Saturday nights are dedicated to my drugged-induced beautry sleep.
3. Lupus made me realize that I am surrounded by endless love and support. How lucky am I to have such a support system!?!? From my mother driving me to my infusion treatments and shoving food down my throat, to my father walking beside me at the 2012 Lupus Walk, to my sister racing me to the emergency room, to my brother checking up on me and reminding me to NOT DRINK, to my best friends smiling as I queen out, shavig my head, helping me when the steps are too high, feeding me when I can’t hold my silverware, hugging me when I need it, and etc etc- These are the people that I could not live without.
4. Lupus gave me the power and the OK to shrug the minor things off. I have lost all my hair, in constant pain, walk with a cane, have uncontrollable/involuntary shakes, have moments of dementia… why the hell am I going to worry if so-and-so is going to call me?! … why the hell am I going to worry about if my boss is pissed at me?!… why the hell am I going to worry about what to wear?!?! … why the hell am I going to worry about if I gained/loss weight?!… why the hell am I going to worry about what I look like?! I have enough on my plate.
5. Lupus gave me the power of spotting the douchebags and bastards early. Nothing scares the douchebags and bastards like telling them that you have an autoimmune disease. My brother calls lupus the “douchebag repellant”.

Here is your moment to shout to the world, spread the awareness, spread the love and hate for what lupus has taken from us and given us. Here is to one day that we all experience a cure for lupus.

HAPPY WORLD LUPUS DAY!

Posted from the Diva on the road

POP- Put on Purple

Research shows most Americans know little or nothing about lupus and its devastating impact on millions of people. You can change that! Put on Purple and tell people why it’s important to raise awareness of lupus and show support for those who suffer from it. BAND TOGETHER for lupus awareness and help the Lupus Foundation of America (LFA) fight this unpredictable and sometimes fatal disease.” –Lupus Foundation of America

Get your purple ready for May 18.

WE CANNOT DO IT ALONE— we need your support!

Join the thousands of people nationwide for Put on Purple (POP) on Friday, May 18, 2012. 

It’s super easy to participate:

1. Wear purple proudly on MAY 18 and don’t you dare be afraid to tell people why!

2. Spread the word! Tell your friends, family, coworkers, employer about PUT ON PURPLE and FORCE them to join you.

3. Consider organizing an office-wide or company-wide participation.

4. Take pictures of your participation and share them with others:

For more information and details, click here: http://www.lupus.org/newsite/pages/Put-On-Purple.html

Let the count down begin!

Be Fabulous! Tell your story and change lives.