Moran Amendment

A message from the Lupus Research Institute

Urge Your Senators Now To Protect
The Future of America’s Biomedical Research

We urge the lupus community to send a strong and immediate message to the U.S. Senate to support an amendment to the Senate Budget Resolution that would increase funding for NIH research in the coming year.

Between today and the weekend, the U.S. Senate is expected to take a final vote on its Fiscal Year 2014 budget resolution.  At some point in the debate, the Senate will consider an amendment by Senator Jerry Moran (R-KS) to increase funding for biomedical research funded by the National Institutes of Health (NIH).  The Moran Amendment would increase NIH funding by $1.4 billion – strengthening the agency’s capacity to fund the research necessary to deliver new treatments and find cures for lupus as well as the many other chronic diseases plaguing so many Americans.

Please help and express your support for Senator Moran’s Amendment by either telephoning or emailing your Senator today or tomorrow. Urge your Senators to vote for the Moran NIH Amendment to the budget resolution.

Use this link to the Lupus Research Institute website to send an email directly to your Senator. Click here to find your Senator’s telephone number and suggested messages to convey.

Here is a summary of the Moran Amendment from his office for your reference:

Funding for the NIH, the focal point of our nation’s medical research, has remained virtually level since FY2010. However, when adjusting for inflation, the FY2012 budget is $3.6 billion lower than the peak year of FY2003.  Success rates for grants have fallen more than 13.6 percent in the past decade and the NIH is projected to fund 3,000 fewer grants this year than it did ten years ago. 

If the United States is to continue its leadership role in providing the medical breakthroughs to develop cures and treat disease, we must commit to supporting funding for biomedical research.  If researchers cannot rely on consistent support from Congress, we will jeopardize our current progress, stunt our nation’s global competitiveness, and lose a generation of young researchers to other careers and other countries. 

Only through steady, sustainable, and predictable funding can the NIH sustain the highest quality biomedical research to help improve the health of all Americans.  In addition, the NIH plays a critical role as an economic engine, supporting approximately half a million jobs nationwide.  Our commitment to the NIH will remain an important factor in saving and improving lives, bolstering the nation’s economy and driving U.S. global competitiveness.

Diva’s note: Political beliefs aside, research is the only route to discovering ideal treatments for lupus. We, as patients, have a chance to be proactive and get involved.


Posted from the Diva on the road or (most likely) in bed.

BREAKING NEWS: Supreme Court Upholds Affordable Care Act

 The Supreme Court today declared in a 5-4 vote that the Affordable Care Act (ACA) — the most significant healthcare legislation since the creation of Medicare — is also a constitutional act. —Medscape News


Regardless of your political view, there is no denying that history was made today. The Supreme Court says ‘Yes” to the Affordable Care Act (aka ObamaCare). But many of us lupus patients are wondering: “How does this affect me?”. In the flurry of emails and reports regarding the decision this morning, the Lupus Research Institute (LRI) sent out an email that summarizes this Act and explains how this applies to lupus patients. LRI did such an amazing job that I am going to copy and paste the email here. Of course, you can receive these email notifications by signing up on their website:

From the Lupus Research Institute:

The day many people living with lupus and other chronic conditions have lost sleep over has come, and we can all rest easier thanks to the positive ruling on the Affordable Care Act from the U.S. Supreme Court.

The  Lupus Research Institute (LRI)  strongly supports today’s ruling for the provisions it makes to protect the 1.5 million Americans living with lupus. The Court’s ruling provided for four critical principles that the LRI and its National Coalition of patient organizations had successfully advocated for inclusion in the current Patient Protection and Affordable Care Act.  Together, we have been on record and calling on Congress to ensure these principles be maintained throughout subsequent rounds of revisions.

Following is the press release the Lupus Research Institute just issued expressing our appreciation for today’s landmark decision and informing the lupus community nationwide of its implications for their future care:

Lupus Research Institute Applauds Supreme Court Ruling on Healthcare Act 

Legislation Maintains Key Critical Principles for People with Lupus and Other Chronic Diseases

NEW YORK, NY – June 28, 2012. The Lupus Research Institute (LRI)  is strongly encouraged with today’s bipartisan U.S. Supreme Court ruling upholding virtually the entire Patient Protection and Affordable Care Act signed into law by President Barack Obama in 2010.

This historic decision is greatly welcomed news for the 1.5 million Americans living with lupus. In upholding the Act, the Court supported principles the LRI and its National Coalition of patient organizations had successfully advocated for inclusion to ensure that people with chronic diseases such as lupus are protected. The Supreme Court ruling maintains the following four key principles so critical to people with lupus and other chronic diseases:

  • Insurance coverage available for all Americans, regardless of pre-existing conditions.
  • Elimination of lifetime caps on health benefits.
  • Provisions dedicated to prevention and wellness and educating those with and at risk for chronic disease on best ways to manage and prevent illness.
  • Dedication to eliminating racial disparities in chronic diseases such as lupus, which disproportionately affects minorities.

“With so much at stake for lupus patients, so many are breathing a sigh of relief with this Supreme Court ruling,” said Margaret Dowd, President and CEO of LRI. “The ability to buy insurance regardless of preexisting conditions is a critically important legal right for all of us – but for people with lupus it’s truly a life and death issue. The current provision eliminating lifetime caps on insurance benefits is another pillar of health care reform that is dramatically increasing treatment options for many lupus patients.”

The Diva’s First Reaction: (with the help form

1. More than 30 million uninsured Americans will find coverage under the law.

2. Insurers’ inability to discriminate against people with pre-existing conditions!!

In summary: This is a huge day for many patients struggling to maintain health insurance to pay for the treatments that are desperately needed to continue daily activities. Options are now available.

Stay Fabulous!